Friday, March 16, 2012

More Medicine-y stuff

I know everyone (like the 3 of you that read this) is probably tired of hearing metalk about my medicine... but I don't care. 

I have great news!

I think the Humira is working!

The Saturday before last I took it for the first time. I couldn't feel the needle at all, but the medicine burned like the dickens! I'm going to let it sit out of the fridge a BIT longer next time. I started having some bad emotional side effects of the Prednizone (I've had that happen before), so I decreased my dose to once a day instead of twice (I don't recommend playing with your dose like that, but let's just say the side effect was getting kinda scarey). I also had to decrease my NSAID (mentioned that one to my doctor) because it was thinning my blood so much I was getting severe nose bleeds. So I basically halved my medicine that was already not enough to keep me out of extreme pain. 

Side note: last weekend, James and I went to the mall to look at wedding bands, as I stood up my knee had this searing pain, it was AWFUL! I was limping throughout the whole mall ("Honey, why did you have to park as FAR as you possibly COULD from the entrance?!?" "I didn't, I parked three spaces from the farthest spot!") Then we went to Kroger, where I finally gave in and got that new shiny pretty blue cane I'd been eyeing (I KNOW, I'm in my mid 20's and I've been EYEING A CANE! I'm such a geezer :p ) Another tangent, don't you find it odd that you have to be rather strong to be able to get the plastic devise off of a Kroger cane? I find that ironic...

Okay, back to the point. So, I halved my medicine, and I have been having one of the first weeks in a long time where I've been really REALLY good. Now I can't run a marathon or anything, but I'm hoping that I've finally found what I need to be my normal, happy self again. 

The downside? I can't breastfeed. I have been wanting to be able to for the longest time. So now I'm not only going to not be able to give my children most of my time by staying at home, I can't even feed them (you know, the natural way) Sigh, I realize that I might not have been able to anyway, as a lack of breastmilk runs in my family. I guess I should just be thankful that I'm able to take something that I can have kids with (that was not a given even 10 years ago). 

My second dose is tomorrow (yay for only having to stick myself twice a month!), I'm wondering if I can get off of the other medicine all together after that. That is the ultimate goal anyway. 

Oh, I've officially applied for the Humira patient assistance program. I find out by Wednesday whether or not they will accept me. If they do, I get totally free medicine for a year. After that? I have no idea, I'm assuming I'll just have to keep applying for the medicine year after year. I guess that's the price for free medicine, right? I'll take it. I heard I was a shoe in for the program, but we'll see. I'm living off of 2 months of free samples right now. (Thank you Lord for free samples!!!) 

Long story short, I have been feeling much better, within two weeks. Dear trend, please continue. 

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